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The deafblind run

The Deafblind Run

A dream run from Ahmedabad to Porbandar

Running for a cause has never been this exciting. Tattva- a voluntary action group, pledged to run 400kms to raise awareness on deafblindness in the state of Gujarat. The group is committed to a vision of making a difference within local commuinties

posted on 21.01.2021

Surendranagar: Founder of Tattva4U Shri Amit Bhattacharjee organised a dream run from Ahmedabad to Porbandar. He was accompanied by 5 more runners.

Ahmedabad: The Deafblind Run was organised by Tattva from Ahmedabad to Porbandar | Gstv Gujarati News

The deafblind run from Ahmedabad to Porbandar by Amti Bhattarjee an Ultra Runner| Circle News | Sayla, Surendranagar

A 400 Km ‘Dream Run’ was organised by “Tattva4U” organisation in aid of disabled children of the Society | Porbandar Mirror

A run was organised in aid of disabled children from Ahmedabad to Porbandar from 22 January to 26th January 2021 | Gujarat News | Porbandar


Bhaskar News, Sayla

Bhaskar News, Sayla

Sandesh Newspaper, Sayla

Sandesh Newspaper, Sayla

Janyug Daily, Surendranagar

Janyug Daily, Surendranagar

Times of India

Janyug Daily, Surendranagar

Ration Kit Support

As 2nd wave of COVID-19 has impacted families of persons with deafblindness and multiple disabilities, we have started supporting the families with ration kit. In the first phase, support for 600 families is extended. We plan to reach out to 1200 families in the coming months.

"The pandemic has been really tough for us. We couldn't open our tea shop in the lockdown and lost our livelihood. Both my daughters got infected with COVID-19. Your support has been a saving grace when we didn't have income and health. The ration kits kept us going."

-Ann Mariya's Mother

New Partner on board in Gaya, Bihar

"The Sparsh programme for the deafblind individuals and their families who has been living in darkness for years has instilled a ray of hope among them. We are determined to work for the individuals with deafblindness and express our thanks to Sense India."

- Mr. Chandra Shekhar Azad, Secretary, Vikalp Foundation

Mental Health Awareness and Support to Children and Young Adults with Deafblindness and their Families

The two years project ‘Mental Health Awareness and Support to Children and Young Adults with Deafblindness was initiated in April 2021. The project is first of its kind catering to 10 to 24 age group and their family members. It will work on spreading awareness, provide capacity building training to Community Based Rehabilitation (CBR) workers and provide psychological and medical intervention support. Advocacy and research initiatives will focus on creating evidence-based documents on mental health issues of CYDb to bring policy level changes.

"This Project is supported by Grand Challenges Canada, funded by the National Institute for Health Research (NIHR) using UK Aid from the UK Government.”

Our advocacy efforts

UN side event on the side lines of UN ECOSOC Youth Forum on 7-8 April 21. The side event was focused on sharing views of persons with deafblindness on health, accessibility, education and need for desegregated data, highlighting the need and role of a support person.

Young adults with deafblindness participated in global SDG call for action campaign, submitting their video messages. Video of Ms Asha Patwal, participant from state of Uttarakhand gained much attention.

Commonwealth network of Youth and Children with disabilities (CCYDN) is engaging youth leaders in global action campaigning. With their support our advocacy officer Shruti along with Asha participated in UN Girls' Education Initiative (UNGEI) campaign on girl’s education. Shruti has been featured in their video.

https://www.ungei.org/media/girls-disabilities-have-equal-right-education and her quote included in the new advocacy brief https://www.ungei.org/publication/leave-no-girl-with-disabilities-behind launched by them.

Sense India submitted summary report of side event at UN CSocD59 which was held in February. The event summary has been selected and posted on United Nations Social Development Network (UNSDN) website at https://unsdn.org/2021/04/15/deafblind-too-need-technology After representing at UN Conference of State Parties (COSP) 13th session last year, we are gearing up for COSP14. Our side event is approved to be held on 16th June.

Our written statement was accepted at last year’s UN High Level Political Forum (HLPF). On 31st May Sense India completed its first 4 year term of UN EcoSoc consultative status. A four year quadrennial progress report has been submitted to EcoSoc office as a statutory requirement.

Other highlights

75 adults with deafblindness completed their training on Samsung Good Vibes App

30 professionals were trained on Mental Health issues and counselling by Healing Dove and ICHARS Support Foundation

5th Batch Web. Ed. Db conducted with 12 parents of persons with deafblindness and MD from 10 cities of India and 4 parents from Nepal has joined the course

Sense International India is back with its 7th Edition of

‘Messengers on Cycles’.

This shall be our 7th year of the annual Cyclothon. The virtual challenge will be an opportunity for all to come together and celebrate the indomitable spirit of Helen Keller who was a renowned deafblind American author, political activist and famous author. Her birth anniversary (27th June) is celebrated world over. The event was launched on 27th June (Heller Keller Day) and will end on 3rd December 2021 (World Disability Day).

A dream run from Ahmedabad to Porbandar

A dream run from Ahmedabad to Porbandar

The Deafblind Run was a dream project of Tattva - a voluntary action group, committed to making a difference within local communities. They partnered with Sense International India to raise awareness on deafblindness and raise funds for the cause across the state of Gujarat. The 400 kms run was led by Mr. Amit Bhattacharjee (a.k.a) ‘Dada’ followed by his team of 5 runners- Barefoot Raja, Ashish Singh, Urvashi Patel, Dr Pratish Sharda and Samneet Thakur. People of Gujarat witnessed such a run for the first time that covered a distance of 400 kms, in 80 hours and across 4 districts from Ahmedabad to Porbandar.

Messenger on Cycle (MOC)

Messenger on Cycle (MOC)

Sense India organises its annual fundraising cyclothon- Messengers on Cycles on Helen Keller Day (27th June), to create awareness on deafblindness and celebrate the day. Cyclists and persons with disabilities on tricycles come together and ride for inclusion, education and support for children and adults with deafblindness. Each year, we spread the message of the importance of education, health and inclusion of people with disabilities into mainstream society by bringing them together on an inclusive cycling event.

National Conclave 2019

National Conclave 2019

The National Conclave, started by Sense India in 2004 is the convergence of its Networks on a national level. As Deafblindness is a unique disability, its low-incidence and scattered population in the country became the reason for the formation of three national level support/network groups. These groups are of teachers (Abhi-Prerna) and families (Prayaas) of deafblind/MSI persons and adult deafblind/MSI persons (Udaan) in India. Sense India mobilizes them on a national level to assist each other and become the most potent force to influence policy in favour of deafblind/MSI children and adults in the country.

Handbook On Deafblindness (English and Hindi)

Handbook On Deafblindness (English and Hindi)

In this handbook Sense International India has attempted to provide information related to deafblindness and the unique features of individuals with deafblindness, along with the implications it has on various areas of development and strategies to facilitate learning. The goal of this book is to help professionals from the field of education, rehabilitation and health care gain better understanding and to explore the rationale of assessments and challenges associated with the clinical and functional considerations for individuals with deafblindness. The principal purpose behind developing this handbook is to increase the interest among educators for taking up challenges and initiatives towards working with deafblind individuals. This handbook will help them to plan their strategies for working with deafblind children and adapt the curriculum leading to overall development. It also discusses the need for transitioning and readiness for vocational life of an adolescent deafblind. In general this book is an attempt to explore all aspects of a deafblind individual's life.

Cover page of Handbook on Curriculum Adaption for Inclusive Education of Students with Deafblindness

Handbook on Curriculum Adaptation for Inclusive Education of Students with Deafblindness

The handbook aims to enable teachers to adapt and modify classroom curriculum as per the needs and abilities of children with deafblindness. It would also increase the number of regular teachers in mainstream schools to work effectively with children with deafblindness. Through this adapted curriculum, Sense International India aims to provide quality education to children with deafblindness and MSI, which will enable them to learn effectively and participate equally in the class. It will also maintain the dignity and build their confidence to learn. Further it will build the capacity of mainstream teachers and schools as well, to enhance their level of understanding and skills. This handbook for the teachers in the school open doors of knowledge for persons with Deafblindness and MSI and support them in motivating to make needs based adaptation for students in the classroom.

Cover page of Play(Hindi)

Play (Hindi)

For Children with Deafblindness and Multiple Disabilities. It is very much important to know the residual vision and hearing ability of the children with deafblindness, which can be used to encourage them in learning. The best mode to build rapport with children is through play. Play has very vital role in life. Children get opportunity to communicate, search, experiment and repeat through the mode of play. This helps in overall development of children. But it is a complex process to begin play with children with deafblindness. Taking all these facts into consideration, this booklet is made. This booklet is especially useful for educators, parents and CBR workers who are or will be working with children in age group of 0-6 years old. With the help of this booklet, children can learn his daily skills through different play activities. This booklet will help to work more effectively in developing rapport with children.

Cover page of Curriculum Based Functional Assessment Checklist for Individuals with Deafblindness of Early Intervention and Functional Academic Groups

Curriculum Based Functional Assessment Checklist for Individuals with Deafblindness of Early Intervention and Functional Academic Groups

The book contains information on the curriculum based functional assessment checklist for the persons with deafblindness. It majorly focused on early intervention and functional academic groups. The book intended to look in to the need to have a curriculum based functional assessment checklist which could be used by the parents and teachers of persons with deafblindness. Hence an assessment tool based on the curriculum has become an immediate necessity. A curriculum based functional assessment checklist is not available in Indian condition. Under this situation, a book is designed to develop such checklist targeting individuals of early intervention and functional academic groups studying in institutes of deafblindness in India. This book can be used by experts, teachers and parents of persons with deafblindness.



Cover page of Management of children with Deafblindness with Cerebral Palsy part-I

Management of children with Deafblindness with Cerebral Palsy Part –I

Developing Gross Motor Skills Management of children with associated Cerebral Palsy along with Deafblindness is often perceived as a challenging task by many of the special educators and parents. This created the need to edify and update the skilled and valuable human resources about management of these children. This booklet gives step by step instructions on the management of problems and developing gross motor skills of children with Cerebral Palsy and Deafblindness. The pictorial illustration will help families and teachers to provide basic need based support to children who have deafblindness and associated condition of Cerebral Palsy. This booklet gives an introduction to Cerebral Palsy, its types, proper positioning and carrying techniques and also techniques to develop gross motor skills.

Cover page of Management of children with Deafblindness with Cerebral Palsy part-II

Management of children with Deafblindness with Cerebral Palsy Part –II

Developing Fine Motor skills. This booklet gives step by step instruction of management of problems and developing fine motor skills and play skills of children with Cerebral Palsy and Deafblindness. The pictorial illustration in the booklet will help teachers to provide basic need based support to children having associated condition of Cerebral Palsy. The booklet gives information of activities that helps in developing fine motor skills and play.

Cover page of Management of children with Deafblindness with Cerebral Palsy

Management of children with Deafblindness with Cerebral Palsy

Feeding, Oromotor Skills and Self- Care Skills Management of children with associated condition of Cerebral Palsy along with deafblindness is often perceived as a challenging task by many of the special educators and parents. This created the need to edify and update the skilled and valuable human resources about management of feeding, oromotor and self-care of children with Cerebral Palsy and deafblindness. The pictorial illustration in book will help families and teachers of children with deafblindness to provide basic need based support to children with deafblindness having the associated condition of Cerebral Palsy. Children with deafblindness and Cerebral Palsy may also have problems with oral motor control and feeding. They can be defensive to certain textures of food. Their other self - care skills can also be affected because of the combination of deafblindness and Cerebral Palsy. This booklet gives activities to improve self- help skills, feeding and also activities to reduce drooling. Since each child is different, the reader will have to modify the activities given based on individual child needs and skills even though the techniques remain the same. The major purpose of this book is to educate the reader.

Cover page of A Comprehensive book on Individualized Education Programme(IEP) for children with Deafblindness and Multi-Sensory Impairments

A Comprehensive book on Individualized Education Programme (IEP) for Children with Deafblindness and Multi-Sensory Impairments

Creating and evaluating Individualised Education Programme (IEP) for students with deafblindness is a major responsibility for the multidisciplinary team that works with such children. As writing IEP can be a complex task for many special educators, this booklet was made as a guide to understand, develop and write effective IEP for a child with deafblindness. To make understanding of IEP easier, sample goals have been included in the IEP. IEP booklet is designed considering the unique educational needs of children with deafblindness and it can be useful resource for individuals who needs to work with children with deafblindness. The purpose behind developing this booklet is to support all special educators and families working with children with deafblindness to understand the importance of a systematically documented educational plan and its contribution to the overall development of the child with deafblindness.

Cover page of Screening and Assessment Formats

Screening and Assessment Formats

This booklet is an attempt to help and support professionals, special educators, school teachers and development of CBR workers in screening, identification and functional assessment of children. This booklet can serve as a universal guide of formats which will be accessible to organizations and educators working in different parts of India. This booklet aims to provide basic but very crucial information related to screening and assessment formats.

Cover page of Syndromes Associated with Deafblindness

Syndromes Associated with Deafblindness

The purpose of this book is to provide a text that will help medical professionals understand some of the major causes of deafblindness. This can help them in diagnosing, assessing and screening children with deafblindness. This booklet has been prepared to target medical professionals like paediatricians, neonatologists, general physicians, and referral doctors etc. to make them aware about deafblindness and syndrome associated with this unique condition. This booklet will help the medical professionals to associate the medical condition with the disability of the child. This will also help them to understand the problems and needs of the children and refer the children to appropriate educational or rehabilitation services.

Cover page of Toilet Training

Toilet Training

Toilet Training for children with Deafblindness and multi-sensory impairments. The booklet has been written to enable families, professionals and non-professionals to understand, how they can help their child with deafblindness in toilet training. The booklet is specially designed for teachers, who are giving services to children with deafblindness and MSI, their parents and caregivers, whose children are not getting any kind of special services and remain at home because of the lack of opportunity for formal training. Toilet training is very important area for a child to develop his independence and dignity and this will teach the child about the importance of staying hygienic, clean and dry. Toilet training requires intensive commitment of time and attention from those working with a child.

Cover page of Incidental learning experiences

Incidental learning experiences

Incidental learning experiences with deafblind children in India. This booklet will help the professionals, parents, persons with deafblindness and all those people who are associated with persons with deafblindness to associate the incidental learning with the disability. This will help them to understand the situation more easily and face the incident without any panic and would be able to address the needs of that particular child at that particular time or situation. The major purpose of this booklet is to inculcate an understanding and mind set for self – learning and to provide alternative solutions to common situations and challenges. This book will provide a body of knowledge that will help educators, professionals, para-professionals, parents and also those people who are not very aware about deafblindness needs but are always willing to help and support them. This will help to understand the inherent needs and identify alternative options at a given situation that present themselves itself during an interaction with children or persons with deafblindness.

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